Autism

Special Needs Diary #2 – A Walk To School

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Dear Diary, A few weeks ago we didn’t have a car. We hadn’t had our own car for nearly eight weeks. At first we had a hire car so nothing really changed, then we borrowed our MiLs car but then we were left with nothing. We had no choice but to walk. We’d told P1 about the walking situation. That …

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Special Needs Diary #1 – A Trip To The Park

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Dear Diary, I have grown to know that our eldest needs previous planning for whatever she does. Whether that be something very small like her next meal, or something big like a trip out. We are in the very first few days of the summer holidays and I’ve mentally prepared myself for mayhem in the first week or so as …

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Coming To Terms With Possible Autism Spectrum Disorder

A couple of weeks ago I took my A4 sheet of paper full of the concerns I have for P1, along with P1 and Hubby to a paediatric appointment. This was our referral appointment following the visit to the GP and it happened much sooner than we expected. It was such an important appointment and I felt so sick with …

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Educational Psychologist Meeting For P1

EIf you are a long term reader of my blog then you will know all the ups and downs we’ve had with P1. For those who are new, my 7 year old daughter was born prematurely and with that has come many difficulties. She’s hyper mobile in her joints, has mild deplegia and is dyspraxic. I also have concerns that …

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An MRI Scan On A 3 Year Old

I really love the Timehop app sometimes. It reminds you of the insignificant events of your life and the really important ones that you shouldn’t forget but do. A few days ago it showed me a status where I was feeling apprehensive about the MRI scan my eldest had to have. It was four years ago today.  The photos in …

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“I may have a daughter with autism”

Imagine giving your child a few packets of sweets, a can of cola and just to top it off nicely a bowl of ice cream topped with sprinkles. You watch their eyes widen, their body begin to go at extra fast, their voices louder and they become uncontrollable. That’s what it’s like to live with P1 right now. As soon …

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“P1 is behaved at school and a crazy nightmare at home”

I’ve always loved the idea of home schooling. Having no early mornings for school runs and being able to spend time as a family doing the things we loved whilst educating and growing my daughters. But then we have school holidays, and they remind me exactly why I don’t and would never go down that route. There’s something wrong with …

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“P1s first school Sports Day”

Today was P1s first school Sports Day. As soon as I received the email notifying of the date/location/time that parents could come along, I experienced butterflies for her. If you’re a regular reader then you’ll know about P1s hypermobility and the way it mainly makes a difference to her physical abilities. Hubby and I had agreed that we wouldn’t be …

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“My daughter is far stronger than I will ever be”

Children are amazing little creatures. The strength they have and the determination is incredible. I saw all of this inside my tiny 5 year old daughter when she went through her growth hormone test yesterday. We arrived at the hospital at 8:45am. My Grandad came to support whilst hubby had P2 for the day. P1 hadn’t asked for food or …

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“I’m so nervous about P1 having the growth hormone test”

Last year, P1 had some blood tests and an X-ray to check her growth. We’ve been a little concerned and so was the paediatrician but considering I’m rather small (4ft 8in) we weren’t too worried about the results. Last Friday, we finally had the results back – she’s normal. Well, there’s nothing wrong with her bones anyway. The next step …

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“The Dr thinks she may have something called Dyspraxia”

We finally had an appointment to see a professional of some sort regarding P1s hypermobility. It’s taken take nearly 5 months but today we saw a paediatrician and she was fantastic!! The Dr asked a lot of questions. I pretty much had to tell P1s life story. I went through everything that happened at the beginning of her life to …

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“P1 has concussion”

It’s been a rather traumatic day today. A day where my life flashed before me. Terror. Worry. Upset. Guilt. I arrived at the school just like normal to pick P1 up. P1 had her head laying on her book bag facing away from me, she’s done this before, another Mummy joked that she was asleep. I tapped her and said …

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