Tag Archives: Hypermobility

Special Needs Diary #11 – Making Friends & Going On A Sleepover

It feels like turning 8 years old has brought so many new things to P1s life already and it’s only been a few weeks. When she received an invitation to attend a sleepover party with one of her new Brownie friends, I had instant flash backs from my childhood. I remember a couple of sleepovers when there was more than …

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Special Needs Diary #10 – An Update

So firstly I am changing the format of this series of blog posts slightly. I’ve changed the name from Autism Diaries to Special Needs Diary. This is purely because we don’t have an official diagnosis and with recent medical appointments and conversations, it just doesn’t feel right to give P1 a definite label yet. However, she definitely is a special …

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P1s Sports Day 2016

I can’t believe that it’s the end of P1s journey as a Key Stage 1 student. She attends a Primary School but when I was her age this would have been her last year in the Infants. In just over six weeks time she’ll be entering the Juniors phase and things are going to get tougher. I always find it amusing …

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Letter To My Princess 1 – 6 Years 6 Months

To my Princess 1, I’ve been really disappointed with your behaviour lately. To the point we’ve been to see the doctors because I know this just isn’t normal behaviour for a 6 year old. We have a few next steps and I hope that you are just in a very awful stage at the moment. You’ve been so doting on …

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Why I Admire My Eldest Daughter

I’m taking part in the April Ultimate Blogging Challenge and today’s prompt was to write about who I admire and why. I had planned to write about my Grandad because my admiration for him is fantastic. But I’ve decided to write about my eldest daughter. I’m still debating whether or not that’s a bit strange. P1 is just over 6 …

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Shoes for a Hyper Mobile Child with Pisamonas

Nothing in the world can prepare you for parenthood. No manual, no blog or person can ever truly describe what it is like to be a parent. They do give you a slight idea and a slight guidance. When P1 arrived into this world I didn’t expect her to be so ill. I certainly didn’t expect her to arrive seven …

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“The Dr thinks she may have something called Dyspraxia”

We finally had an appointment to see a professional of some sort regarding P1s hypermobility. It’s taken take nearly 5 months but today we saw a paediatrician and she was fantastic!! The Dr asked a lot of questions. I pretty much had to tell P1s life story. I went through everything that happened at the beginning of her life to …

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Zoggs Affordable Girls Swimming Costumes

Having a child diagnosed with hypermobility makes you face many complications in normal every day life. One of these complications for P1 is swimming. She’s been swimming since she was in the parent and baby lessons with me. She’s confident in water but she can’t physically swim. Last week she started her third swim school. To prepare for a swimming …

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World Prematurity Day 2013 – My Story

It’s World Prematurity Day – 17th November 2013. 15,000,000 babies were born prematurely this year, 60,000 of those were here in the UK. Thousands of families and friends lives torn apart. Being pregnant at the age of 15 I never imagined that anything would go wrong. Naive. Stupid. Young. I gave birth to P1 at the age of 16. That …

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Living With Joint Hypermobility

Joint Hypermobility – Joint hypermobility means some or all of a person’s joints have an unusually large range of movement. As a family we live with hypermobility every day. P1 lives with it every day and she cannot escape from it. It all officially began in 2010 when P1 took her first steps. She was an early, premature baby which …

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“When we go back to Essex every Saturday it just doesn’t feel the same”

I keep getting asked about my move from Essex to Kent. Why I did it? How’s it been? Have I settled? etc etc. Losing my Nan so close to move county’s has be tough, real tough, but there’s absolutely nothing I regret. Everything’s different over here. It’s cleaner, it’s prettier, the petrol is more expensive, Tesco & Sainsburys have Fast …

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The Start Of Growth Tests

I’ve mentioned in a previous post that P1 was due to have an appointment at the hospital regarding her growth. They’ve been tracking her height and weight at the child development center where she has her physiotherapy sessions for the past two years and they have noticed that her growth has slowed which is concerning. Well that appointment didn’t happen …

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