disabled

Special Needs Diary #10 – An Update

So firstly I am changing the format of this series of blog posts slightly. I’ve changed the name from Autism Diaries to Special Needs Diary. This is purely because we don’t have an official diagnosis and with recent medical appointments and conversations, it just doesn’t feel right to give P1 a definite label yet. However, she definitely is a special …

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Special Needs Diary #6 – Pathological Demand Avoidance?

Dear Diary, As the weeks go by and especially now it’s the school holidays, I feel like I am learning more about P1. I read a lot of things now because I’m trying to fill my brain with the information that will be key to helping her. Something that has become evident to me is that I’m nearly certain that …

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“I may have a daughter with autism”

Imagine giving your child a few packets of sweets, a can of cola and just to top it off nicely a bowl of ice cream topped with sprinkles. You watch their eyes widen, their body begin to go at extra fast, their voices louder and they become uncontrollable. That’s what it’s like to live with P1 right now. As soon …

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Stabilo EASYoriginal Pen and EASYergo Pencil Review

P1 has been receiving Early Literacy Support at school. I was a bit sceptical about it all at first, I wasn’t sure that it would help and to be honest I hadn’t noticed a problem with her writing or literacy. I thought she was doing well. I couldn’t turn down the opportunity to try out a special pen and pencil …

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“At first I thought it may be because she’s struggling”

There’s so much going on in P1s life and I find it difficult to stay on board with it all. The other two take up so much of my time that I guilty sort of forget. I forget that she’s not an average little girl. This year has already seen some changes for P1 at school. They’ve started swimming lessons …

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“P1s first school Sports Day”

Today was P1s first school Sports Day. As soon as I received the email notifying of the date/location/time that parents could come along, I experienced butterflies for her. If you’re a regular reader then you’ll know about P1s hypermobility and the way it mainly makes a difference to her physical abilities. Hubby and I had agreed that we wouldn’t be …

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“There was a rather loud donk and a screaming P1”

First of all I’ll set the scene. We’d had yet another bad bedtime on Saturday, the girls were both up early, P1 was being as defiant as ever and I was juggling a stroppy P2 who I’d attempted to entertain by allowing some water play in the kitchen whilst I cooked egg and dippers for lunch. Hubby was having his …

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“My daughter is far stronger than I will ever be”

Children are amazing little creatures. The strength they have and the determination is incredible. I saw all of this inside my tiny 5 year old daughter when she went through her growth hormone test yesterday. We arrived at the hospital at 8:45am. My Grandad came to support whilst hubby had P2 for the day. P1 hadn’t asked for food or …

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Extra Narrow Swing Shut Safety Gate from Tippitoes

I’ve very rarely used stairgates in P1s life span. The last time I used them was when I shared a house with one of my friends and her daughter. P1 has always understood, always been slow and careful when moving herself about especially up and down stairs. Then P2 came along, and we moved out. We actually moved before she …

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“I was a new mum to a premature baby at just the age of 16”

When I was pregnant with P1 I was expecting to have her in February 2009. She had other plans. Eager to meet her family and be introduced into the very scary world, P1 arrived in December 2008 just in time for Christmas, Christmas Eve! She weighed 4lbs 13oz which was a really good weight considering she was nearly two months …

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“Between the age of 12 and 13 months another set of vaccinations are due”

Between the age of 12 and 13 months another set of vaccinations are due. P2 turns 13 months next week, therefore she had her vaccination appointment yesterday. P2 was happy and cheeky in the waiting room. Toddling around pulling magazines off the table and making the oldies laugh and smile. Little did P2 know that she was about to be …

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Winter Little Adventures Challenge with Barny

We first tried Barny Bear sponge snacks last year when we were challenged to go on an adventure. A few weeks ago we were given two packs of their new flavoured sponge bear snacks; Apple and Strawberry. Let’s just say everyone was a little excited about the special snacks sitting in our snack drawer. I’d planned a great adventure around …

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“I’m so nervous about P1 having the growth hormone test”

Last year, P1 had some blood tests and an X-ray to check her growth. We’ve been a little concerned and so was the paediatrician but considering I’m rather small (4ft 8in) we weren’t too worried about the results. Last Friday, we finally had the results back – she’s normal. Well, there’s nothing wrong with her bones anyway. The next step …

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